The James Lind Alliance Methodology was used to bring together patients, parents, charities and clinicians identify the unanswered questions about congenital heart diseases and agree on the most important for research to address.
The PSP asked patients, carers and clinicians about their experiences of the management of congenital heart disease throughout life, including prior to birth. A series of questionnaires were used to gather and rank individual questions from more than 500 respondents in order to identify priority questions. Consensus workshops were then used to discuss and agree the top 10 national priorities in each respective area. Dedicated working groups will take each question forward in order to develop a network of multicentre trials in congenital heart disease.
Read more on the priorities here